I don’t complain about getting older. There’s no point to it, and besides, it beats the alternative. But one annoying and frustrating symptom has become exponentially worse lately, and I’m wondering how much of it has to do with MS.
As men age, it is not uncommon for us to have to urinate more often. From what I understand, the prostate increases in size and presses against the urethra, which prevents us from fully emptying our bladders. So when I found myself going more often at night and during the day, I wasn’t surprised. Besides, there is medication that helps remedy the problem, and when I first started taking these meds it definitely helped. But now these meds are as useful as tits on a bull.
To put it bluntly, I can’t hold my water, am constantly dealing with what I refer to as a leaky faucet, and it is driving me out of my mind. I have to wear pads to absorb the drips (and sometimes more than a drip) and have a urinal in my car in case the need becomes extreme and I’m not anywhere near a bathroom. I’m guessing that I’ve had to pull over and use it a dozen times over the past year.
I had the unpleasant experience of dealing with a kidney stone that had to be surgically removed a couple of years ago. It came as a complete surprise, and I hope to never experience it again. My urologist told me that if I didn’t consume a ton of salt (I don’t) and drink around 100 ounces of water a day (I didn’t), I would never see him again. From then on my water consumption jumped from practically nothing to that magic number. Keep in mind that water does not include coffee or beer.
So I know part of the reason I pee all the time is because my bladder is always full. But there is more to it than that.
First you should know that I typically start work between 5:30 and 6:00, and the first thing I do when I arrive in the office is get a cup of coffee (12 oz). Once that is consumed I start filling my mug with hot water, and consume 100 ounces between seven and noon. During that time I make the trek from my desk to the men’s room every half hour or so. Once the 100 ounces is consumed I don’t drink anything.
So, the other day I made three stops to the men’s room after my last mug of water, including as I was leaving the office for the trip home. Keep in mind it had been over three hours since I drank any liquid of any kind.
When I arrived home, 45 minutes later, I had to rush to the bathroom because the faucet was dripping. Then I went to the basement to work out on a recumbent bike I have, and had to inturrupt my workout after 20 minutes because I had to go again. Then after I returned and finished my routine (less than fifteen minutes later), I found that I had to go again once I got into a standing position. Once upstairs I sat for a while before getting up to set the dinner table, and had to go yet again. To make a long story short, I had to pee seven times in less than three hours, and this was long after I consumed any liquid.
It seems that anytime I go from a sitting to upright position, or do anything that could get things chruning, I have to go. Immediately! It’s as if gravity triggers the need to void whatever is in my bladder, and since my muscle control down there is much worse since the MS, the faucet begins to drip. If I don’t attend to it, it will become a flood. Fortuantely that hasn’t happened yet.
It’s maddening. I literally have to plan my day and where I might be going around the amount of liquid I’ve consumed and whether there is a bathroom I can use. I hate using the pads, but need them all the time. Who wants to feel wet all day long or, even worse, walk arond with a wet spot in a place it doesn’t belong? On the days I have my plasma transfers, I literally can’t drink anything for at least two hours prior to the procedure, because once it starts I can’t get up and aren’t supposed to move my arms. The dilemma is water helps fatten the veins, which makes them easier to find.
Age and MS are probably both at work here. I am obviously not emptying the chamber whenever I go (age), but the frequency and urgency in which the need arises is because I can’t hold anything (MS). It’s as if there is nothing to stop the flow once I stand up, which is maddening for someone who used to be be able to hold it all day long if necessary.
At least I don’t have this issue when it comes to empyting the intestines, which I know can be problematic for folks with MS. I don’t even want to contemplate what that would be like.
It’s equally maddening.
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And perhaps a glimpse into the future, although I certainly hope not
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I know you didn’t ask, but as you know I have a LOT of experience with this. Since you mentioned medication, I assume you have seen a urologist. If not, begin there. They can do a test called a post void residual which will confirm if you aren’t emptying your bladder which is much different that bladder shrinkage etc. Also another thing to consider is botox injections to your bladder. Most people find relief from leakage for up to 8 months, although for me it’s only 3-4 months typically and I combine this with PTNS every 4 weeks. (I have been having issues for more than 16 years though, and have worn out all of the medications.) There is also an option of self cathing which WILL empty your bladder each time. Good luck Steve!
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Thanks for the info. Not sure why I didn’t think of you first
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heh I’m kind of glad you didn’t think of me first. I mean, I’m glad my bag of pee is not the first thing you think of when you remember me
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Never saw your bag of pee, otherwise it would be burned into my memory
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Maddening. You’ll figure it out. Listen to Karen/Grace. That’s who I’d go to with questions. I don’t subscribe to the ‘age’ thing. Not these days! MS… don’t know the extent of symptoms. With a Fibro, we experience IBS. However, it can be managed! By the way, dehydration causes frequent urination! Stay hydrated my friend!
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All I can say is men have it easy. You can whip it out in a urinal in the front seat of your car. Not so lucky for us girls. Take that annoying urgency with the lack of ability to walk/run to get to the bathroom. It’s just so unfair and tremendously humbling.
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Guilty as charged
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that is one problem I don’t have (yet) and I don’t want to
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